Blog | walknrollingwithspinabifida

Ar’kia

My daughter Ar'Kia is 6 years old she was diagnosed with Spina Bifida when I was about 5 months pregnant with her. She had her spine...

Hi my name is Jane colfer. I am 24 years old. I live in the south east of Ireland in county Waterford. I was born with Myelomeningocele...

Hey everyone my name is Stephanie Stabile! I am from Debary Florida . I was diagnosed with Chiari Malformation after a car accident in...

I always start my story with " I went asleep as LeaAnn and woke up a total stranger." On September 2014 Labor day, I suffered a bleeding...

Hydrocephalus: The pressure test ICP (Intracranial Pressure) Monitoring, something I’ve heard about before, seen other Hydro warriors go...

Betty Mekdeci is the Executive Director at Birth Defect Research for Children. Her website is http://www.birthdefects.org/about-us/. On...

Hello my name is Margaret Tengstrom. I have Lipo Myelomeningocele. My back was closed when I was born. I don’t have Arnold Chiari...

Hi, my name is Mara. I have Spina Bifida. I have had several surgeries, as I am sure we all have. I also have Syringomyelia, and...

Drink up her sadness from her jar of tears Let her in and show her no fears Write down all your emotions on paper So it sounds like music...

One of the days I have been dreading is coming. We have been so very blessed with physicians to care for our son Caleb with...