Blog | walknrollingwithspinabifida

Observations from a Silent Wheeler

It is said that “the squeaky screw gets the grease.” That’s true, and the same thing can be said for the squeaky wheel. There may be a...

Rob was born with Hydrocephalus in 1997. Rob was 3 days old when he had his first surgery to have a shunt implanted . All together Rob...

Children who have any disability grow up learning that there are many different levels of "norms" in our society. Disabled children...

Allison Thometz is 41 years old and lives in Eugene,Oregon. Allison was born with Myelomeningocele Spina Bifida and Hydrocephalus ....

Cori Rae is a 39 years old woman born with Cerebral Palsy . She has blond hair and blue eyes . To get around she uses a walker .She has...

As evening falls chasing The sun away the stars come out to Steal the show, the crickets sing a welcome song As the fireflies dance...

You ask me how I'm doing I say that I'm ok While deep down inside My silent screams unheard Invisible are my tears Hidden by my smile...

I always start my story with " I went to sleep as LeaAnn, and woke up a total stranger. On September 2014 Labor labor day, I suffered a...

Lyllyan Blare spent 28 years in a healthy, able body before becoming chronically ill with 2 very rare diseases. She’s slowly losing her...

Dear colleagues I am in contact with a family from Belgium, where a girl with Spina Bifida is a part of. Her big brother was asked at...